The CHAMP Foundation
The Champ Foundation supports research toward better treatment and a cure for single large-scale mitochondrial deletion syndromes (SLSMDS), like Pearson syndrome.
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The Champ Foundation supports research toward better treatment and a cure for single large-scale mitochondrial deletion syndromes (SLSMDS), like Pearson syndrome.
This page is dedicated solely to the parents of children who have been diagnosed with Leigh's Syndrome - a mitochondrial disease.
International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.
The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.
CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.
This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others.
Founded in 1998 by doctors Richard Haas and Robert Naviaux, the MMS represents an international group of physicians, researchers and clinicians working towards advancing education, research and global collaboration in clinical mitochondrial medicine.
mitoSHARE is a worldwide patient-populated registry initiative stewarded by UMDF. The goal of the registry is to advance scientific research using data gathered from patients and families affected by mitochondrial disease.
Learn about the PA state law that requires children to be vaccinated to attend group childcare settings in the state of PA.
This resource from Children’s Hospital of Philadelphia provides information about energy therapy, its benefits and what to expect during and after treatment.