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Management of Infants with Lymphatic Disorders Clinical Pathway — Inpatient
This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Youth Heart Watch Heart Safe Schools Referral Form
Youth Heart Watch works with schools to help them obtain and maintain automated external defibrillators (AED).
Supporting Bereaved Siblings
The impact that a child’s death leaves on their sibling is immeasurable, yet there are ways to help. Acknowledging the sibling’s feelings, helping them express their emotions appropriately and navigating what individualized resources are available can positively impact how each child copes with death.
Breathing Exercises
Learn about the eight different breathing exercises and instructions on how to perform each.
Frequently Asked Questions about Gene Therapy for Hemophilia
Explore answers to the most common questions asked about gene therapy for hemophilia.
About Hemophilia
Hemophilia is a genetic disease that prevents blood from clotting properly leading to prolonged internal and external bleeding. Read more hemophilia and the existing treatments.
Gene Therapy in Hemophilia
View interactive webinars, educational resources and the latest news about hemophilia.
MitoAction
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.
PALS (People Against Leigh Syndrome)
People Against Leigh Syndrome, (PALS), was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome, a genetic neurometabolic disorder that can cause deterioration of the central nervous system, including the brain, spinal cord, and optic nerve.