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Got Transition has developed two different measurement approaches, described below, to assess the extent to which the Six Core Elements of Health Care Transition 2.0 are being incorporated into clinical processes.
This document should be completed by pediatric medical providers, in collaboration with patients and their caregivers, then should be shared with the transitioning patient’s new, adult medical providers, as well as the patient and their caregivers, as appropriate.
This is a sample of a letter to be written by the pediatric provider, and sent to the new adult provider of a patient transitioning to adult care.
The KISS Initiative is an online Facebook support group for families of pediatric stroke survivors. It is a public forum where parents share stories, resources and support.
Pediatric Stroke Warriors was founded by the mother of a child who had a stroke. Their mission is to support children and their families as they recover from a stroke. Supports include the Brave Box/Warrior Bag Program, a family toolkit brochure, and lists of national and state resources.
The World Pediatric Stroke Association (WPSA) works to raise awareness, knowledge and research about pediatric stroke. WPSA has a blog written by parents of stroke survivors and opportunities to connect with other families.
In peer mentoring, a person who has lived through a specific experience mentors a person who is new to that experience. Children’s Hospital of Philadelphia is conducting a research study of peer-to-peer mentoring for oncology patients.
This resource will help to show what your child already knows about their health; and will show areas that you think they (or you) need to know more about as they transition to an adult healthcare provider.
Gender is not binary, but more akin to a spectrum, with “male” and “female” being either endpoint or pole of the spectrum.
Since everyone’s gender identity is unique to them, there is no one perfect way to come out. It can be tricky to figure out how to come out, but it is an important step in getting to be yourself.