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Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.
From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.
This resource provides a view of the many treatment options for nosebleeds cause by Pediatric Hereditary Hemorrhagic Telangiectasia (HHT).
These resources are available to support caregivers of children cared for by the Cancer Center at Children’s Hospital of Philadelphia.
We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
The American Syringomyelia & Chiari Alliance Project Inc. (ASAP) is a nonprofit organization dedicated to improving the lives of individuals affected by Chiari malformation, syringomyelia, and related disorders. They provide support, education and information for patients and their families, fund research, and work to increase awareness and understanding of these conditions.
A comprehensive guide offering parents practical advice on managing childhood constipation with a focus on effective treatments.
A child-friendly book designed to help families open up about constipation and encourage healthy habits.
A comforting story for children experiencing fear or pain while using the toilet, aiming to ease their worries
A website providing resources for parents and caregivers about gastrointestinal health and disorders in children.