Virtual Cooking Classes for Children with Cystic Fibrosis and their Families
Sign up for virtual cooking classes on healthy eating for children with cystic fibrosis (CF) or watch previously recorded classes.
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Showing 1541 - 1550 of 1565 results
Improving Executive Functioning in Children with ADHD: What Parents and Caregivers Can Do
In this presentation. Drs. Glanzman and Nissley-Tsiopinis provide an overview of what executive functions are, how they are measured, and how they are related to attention deficit hyperactivity disorder (ADHD).
Improving Social Functioning in Children with ADHD: What Parents and Caregivers Can Do
In this presentation Drs. Glanzman and Nissley-Tsiopinis provide an overview of the development of social function in children and its link to executive function.
ALD Alliance
The ALD Alliance exists to cure, support and advocate for ALD as well as to advocate for nationwide newborn screening.
Global Leukodystrophy Initiative Consortium (GLIA)
Children’s Hospital of Philadelphia (CHOP) is leading an initiative to establish a multi-institutional program to advance research and treatment across the leukodystrophies.
KrabbeConnect
The idea for KrabbeConnect originated from the 2015 Family Centered-Krabbe Translational Research Network meeting (FC-KTRN), a collaborative meeting between researchers and families to aid in solving the uncertainties of Krabbe disease. Through KrabbeConnect, the foundation provides a platform to amplify the voice of patients, aiding researchers and drug developers in accelerating research for better treatments for Krabbe disease.
Hunter's Hope Foundation
Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, our mission is to strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses.
Rosenau Family Research Foundation
Improving the lives of patients impacted by Krabbe disease and Cystic Fibrosis through research funding and disease advocacy.
MLD Foundation
MLD Foundation was formed in May 2001 to serve families throughout the world affected by metachromatic leukodystrophy (MLD), an ultra-rare, terminal, neurometabolic, genetic disease.
PMD Foundation
This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy.