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Proteus Syndrome Foundation

A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

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Section 504

Section 504 of the Rehabilitation Act of 1973 ensures that individuals with disabilities are given protection from discrimination. Often at school, this means that a child is allowed reasonable accommodations as determined by a 504 Committee.

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Imagination for Relaxation

The ability to think in images or pictures is a skill that comes easily to children and teens, and can also be helpful for pain management.

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Where to Get Speech Therapy

Parents of children who stutter have a variety of options when seeking therapy. Learn about where you can go for speech therapy and the pros and cons of each setting.

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