HS Foundation
The Hidradenitis Suppurativa (HS) Foundation seeks to improve the lives of people affected by HS through advocacy, education, virtual meetings, and research.
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International Association of Hidradenitis Suppurativa Network, Inc.
IAHSN.org promotes advocacy, awareness, education, legislation and wellness for patients living with hidradenitis suppurativa. Resources include a team of specially-trained advocates.
Dove Self-Esteem Project
The Dove Self-Esteem Project seeks to build positive body confidence and self-esteem with resources for youth, parents/mentors, and educators.
Mind-Body Connection Video
This animated video for kids gives real-life examples of the mind-body connection: how stress and big feelings can sometimes result in physical symptoms such as headaches, nausea, dizziness and pain, even when tests and lab results cannot identify a cause.
Stop Childhood Pain
A nonprofit founded by a retired CHOP pediatrician to educate children, families and healthcare providers about Amplified Musculoskeletal Pain Syndrome (AMPS) and related disorders. The site provides a list of dedicated treatment programs in the U.S., as well as videos that focus on diagnosis, treatment and patient stories.
The Comfort Ability
This one-day, in-person workshop (offered at CHOP and elsewhere) is intended for adolescents ages 10-17 and their caregivers. The workshop teaches pain management strategies and coping skills that are rooted in cognitive behavioral therapy (CBT).
The Chronic Pain and Illness Workbook for Teens: CBT and Mindfulness-Based Practices to Turn the Volume Down on Pain
Workbook meant to complement in person psychotherapy for teens with chronic pain. By Rachel Zoffness, PhD.
Dr. Rachel Zoffness, PhD, Recommended Resources
A listing of books, articles, videos, podcasts and programs as well as providers, for young people experiencing chronic pain.
The Meg Foundation
This foundation educates kids and their families about pain and pain management. The content is organized by age group and type of pain, in multiple languages, and includes extensive video content.
The United Healthcare Children’s Foundation (UHCCF)
A 501(c)(3) charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their parents’ commercial health insurance plan. Families can receive up to $5,000 annually per child ($10,000 lifetime maximum per child). **See your Social Worker for assistance with application**