Fetal Surgery for Spina Bifida: Luelle’s Story
Luelle underwent fetal surgery to treat myelomeningocele, the most severe form of spina bifida. Her journey was documented in the PBS series TWICE BORN.
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Luelle underwent fetal surgery to treat myelomeningocele, the most severe form of spina bifida. Her journey was documented in the PBS series TWICE BORN.
When doctors discovered her unborn baby had an enormous tumor, Lesly moved cross-country in search of hope for her daughter. The PBS series TWICE BORN followed their journey.
Kelly Heffernan felt lost when a mass was discovered on her unborn daughter’s right lung. Here, she shares the story of how she and Emma Grace found their way to CHOP.
After learning their unborn daughter had myelomeningocele, the most severe form of spina bifida, Miah’s parents turned to CHOP for care that would allow her to thrive.
Before Eli was born, he was diagnosed with a congenital cystic adenomatoid malformation (CCAM), a large mass in his left lung. Eli’s dad, Matt, shares the story of his family’s journey to CHOP.
After undergoing fetal surgery at CHOP for a pericardial teratoma, Tucker became the first baby to survive having a tumor removed from his heart before birth.
Despite insurance obstacles, a family found hope at the Center for Fetal Diagnosis and Treatment after learning their baby had a sacrococcygeal teratoma (SCT).
After Aiden and Dillon were prenatally diagnosed with twin-twin transfusion syndrome (TTTS), Rachel underwent a fetal surgery procedure to halt the progression of the condition.
Luke and Landon were diagnosed with twin-twin transfusion syndrome before birth. Things got more complicated when the family learned that Luke also had a heart defect called tetralogy of Fallot and a lung lesion.
Ciarlo was diagnosed before birth with spina bifida and had surgery at Children’s Hospital of Philadelphia the day after he was born. Today, he’s followed by the Spina Bifida Program.