
Omphalocele and Feeding Challenges: Eliana's Story
When Anna was 18 weeks pregnant, she discovered one of twins she was carrying had omphalocele, a rare, potentially life-threatening birth defect.
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When Anna was 18 weeks pregnant, she discovered one of twins she was carrying had omphalocele, a rare, potentially life-threatening birth defect.
Much research has been done about helping children survive pregnancy with twin-twin transfusion syndrome, but little research has addressed ongoing challenges these children may face. To address that need, the Epsteins and the Conway Family Foundation have funded a multiyear study at CHOP .
Diagnosed with a severe congenital diaphragmatic hernia (CDH), Emerson’s family turned to CHOP, where an expert, multidisciplinary team made all the difference.
Emily Kelly underwent successful fetal surgery at Children’s Hospital of Philadelphia to remove a cervical teratoma, a type of giant neck mass.
Mason was prenatally diagnosed with LUTO (keyhole bladder) and successfully treated with fetal surgery at Children's Hospital of Philadelphia.
Rowan was diagnosed before birth with a sacrococcygeal teratoma (SCT), a tumor located on her tailbone. She underwent surgery at CHOP the day after she was born.
Diagnosed prenatally with the abdominal wall defect gastroschisis, Vincenzo’s family traveled to CHOP for delivery and expert surgical repair. See how he's doing 10 years later.
Zoe was diagnosed before birth with small bowel atresia, a cause of fetal bowel obstruction, and underwent surgery at CHOP when she was just 1 day old.
Prenatally diagnosed with a severe congenital diaphragmatic hernia (CDH), Laura underwent successful CDH repair surgery at Children’s Hospital of Philadelphia.
In 2006, Addison underwent fetal surgery to remove a life-threatening chest mass at Children's Hospital of Philadelphia. Find out how her family is helping others.