Beckwith-Wiedemann Syndrome and Pancreatoblastoma: Kaitlyn’s Story
Kaitlyn, 12, has remained positive through multiple surgeries for the symptoms of a rare genetic disorder and treatment for an associated cancer.
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Kaitlyn, 12, has remained positive through multiple surgeries for the symptoms of a rare genetic disorder and treatment for an associated cancer.
Evan’s fevers and arm pain required emergency evaluation. With CHOP’s new KOP hospital now open, families like his can reach a E.R. much faster.
Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.
Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.
A rash that appeared as a few tiny purple spots on Sloane’s arms and legs signaled to her parents, Lyndsay and Jon, that something might be wrong, even though the little girl was not showing signs of being sick in any way.
A week before his seventh birthday, Ayush was woken up from sleep by an excruciating headache. When he talked, his speech was slurred. His parents, Reshama and Amol, are both physicians, and when they were in medical school, did pediatrics rotations at Children’s Hospital of Philadelphia (CHOP).
When Jacob was 11, he began experiencing intermittent pain in his right leg. Since the pain came and went, he continued playing sports, but the pain worsened, and one night, it was so bad that it woke him up from his sleep.
Kathryn has overcome more in her 17 years than most do in a lifetime. Learn how CHOP helped her and her family face each new challenge.
A tumor in the bones around her eye robbed Vanessa of her vision in one eye, but she showed strength and resilience dealing with treatment and long-term side effects.
18-month-old Josie received a stem cell transplant to stop a rare and devastating genetic condition in its tracks.