Imagine a Rainbow: A Child’s Guide for Soothing Pain
A book for children ages 2 and up that teaches how mindfulness, visualization and deep breathing can help manage chronic pain. By Brenda Miles.
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Be the Boss of Your Pain: Self-Care for Kids
An empowering book for kids ages 8-10 that teaches them how to use their mind, body and spirit to control how their body feels, even when they’re in pain. By Timothy Culbert, MD.
When your Child Hurts: Effective Strategies to Comfort, Reduce Stress, and Break the Cycle of Chronic Pain
A guide for parents to help kids develop a multi-disciplinary approach to pain management, with the goal of bringing greater comfort and returning them to previous levels of function. By Rachel Coakley, PhD.
Managing your Child’s Chronic Pain
This guide for parents of children and adolescents offers practical strategies and tools for management of chronic pain with the goal of kids fully participating in school, sports, social life and family life. By Tonya Palermo, PhD, and Emily Law, PhD.
Neurosymptoms.org
A comprehensive source of information and education about Functional Neurological Disorder (FND), which offers written, video and podcast content for children, caregivers and health care providers, along with links to support groups. The site also has an app.
myFND app
This app from neurosymptoms.org helps with tracking symptoms of FND and supports communication with the user’s health care team.
FND Hope
This international patient- and caregiver-run organization has a website with educational information about symptoms and treatment. Other resources include search tools to find providers and peer support groups, as well as research updates, an events calendar and a webinar library.
NEUROkid
An educational site for children and caregivers who are living with non-epileptic events (PNEE, pseudoseizure and others). The explanatory content is extensive, as are the downloadable symptom management tools.
FND Action
A UK-based, patient-led charity focused on education and peer support. FND Action has educational materials including an FND toolkit. Other peer support groups based in the UK include FND Dimensions.
FND Australia
This Australia-based educational organization has printable Fact Sheets on its website that focus on education for families, the role of PT/OT in treating FND, and the role of psychology in understanding the mind-body connection.