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Clinical Management Guidelines for Friedreich's Ataxia

Developed for clinicians and patients, these clinical management guidelines seek to ensure better outcomes by improving diagnosis, treatment and management of FA. Read the user's guide for instruction on how best to utilize the full guidelines and find the information you need.

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Community Impact Reports

If you’d like to explore our reports going back to 2012, we have them available just a click away.

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Scientific Registry of Transplant Recipients

The Scientific Registry of Transplant Recipients (SRTR) is an ever-expanding national database of transplant statistics. The registry exists to support ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, and pancreas. 

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Child Passenger Safety Tip Card for Police

This pocket-sized tip card has the basics about car passenger safety — with room for you to customize it with your state's traffic code. Then cut, fold, laminate and distribute the tip cards to law enforcement officers to carry with them. Many in law enforcement feel that lack of knowledge prohibits them from writing citations and warnings or providing guidance during a routine traffic stop.

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