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Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**
LE&RN fosters and supports research regarding understanding of the lymphatic system. Website has information on clinical trials and research updates.
A 501(c) (3) not-for profit organization whose mission is to advance research, find the cause of and cure for lymphatic disease. Includes factual information, resources, newsletter, and a medical journal.
Assistance available to patients who are enrolled in Medicaid coverage, including non-emergency medical transportation or mileage reimbursement for outpatient appointments (local and long distance) as well as lodging and meal assistance if travelling from out of town for hospitalizations and out-patient visits.
Advocacy and support for primary and secondary lymphedema. Includes factual information, physician and therapy centers, resources, and a newsletter.
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Hemangioma and vascular malformation advocacy and support. Includes physician list, related support services, patient networking, blogs, and transportation services.
Radiology child life specialists at Children's Hospital of Philadelphia offer tips for helping your child cope with radiology procedures.
Parents, patients and doctors discuss the evaluation and treatment of Graves' disease at CHOP.
Phil and Molly Ronca brought their 14-year-old daughter to CHOP for thyroid cancer treatment.