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United Leukodystrophy Foundation (ULF)

ULF is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.

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The Yaya Foundation for 4H Leukodystrophy

The Yaya Foundation focuses on finding a cure for 4H leukodystrophy by supporting research, raising awareness, improving education and connecting families.

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Diagnosis and Management of Mitochondrial Disorders

"Written by the world’s foremost mitochondrial researchers, the book comprehensively presents the state-of-the-art in mitochondrial medicine, making it of interest to a wide variety of specialists, including neurologists, geneticists, internists and biologists."

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Cure MLD

Offers support to families recently diagnosed with or living with metachromatic leukodystrophy (MLD). The website links to relevant clinical and research opportunities available at CHOP.

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13thirty

13thirty is an internationally known and respected leader in the field of adolescent and young adult (AYA) cancer because of our strong passion, clear vision, and steadfast commitment to a singular focus — teens and young adults with cancer.

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