CLOVES Syndrome Community
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
Caring for your child
Search patient & family resources
Filter By
Type
Aggregated field
Topic
Showing 461 - 470 of 1561 results
Exceptional Parent Magazine
A magazine for parents of children with special needs.
Hereditary Hemorrhagic Telangiectasia (HHT) Foundation
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
Klippel-Trenaunay (KT) Support Group
Vascular Malformation advocacy and support. Includes factual information and resources.
Lymphangiomatosis & Gorham Disease Alliance (LGDA)
Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**
Lymphatic Education & Research Network (LE&RN)
LE&RN fosters and supports research regarding understanding of the lymphatic system. Website has information on clinical trials and research updates.
Lymphatic Research Foundation
A 501(c) (3) not-for profit organization whose mission is to advance research, find the cause of and cure for lymphatic disease. Includes factual information, resources, newsletter, and a medical journal.
Medicaid - Transportation Assistance
Assistance available to patients who are enrolled in Medicaid coverage, including non-emergency medical transportation or mileage reimbursement for outpatient appointments (local and long distance) as well as lodging and meal assistance if travelling from out of town for hospitalizations and out-patient visits.
National Lymphedema Network, Inc.
Advocacy and support for primary and secondary lymphedema. Includes factual information, physician and therapy centers, resources, and a newsletter.
National Organization for Vascular Anomalies (NOVA)
Hemangioma and vascular malformation advocacy and support. Includes physician list, related support services, patient networking, blogs, and transportation services.