Transplant Process at CHOP
Information on the transplant process at CHOP.
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Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Camp Freedom
Camp Freedom is a lifeline for children with diabetes to develop the critical skills needed to thrive while managing this disease. Attending summer camp helps children develop social skills, self-respect and life-long friendships. We give kids the opportunity to meet other kids just like them while fostering independence, building self-confidence and gaining an awareness of a healthy lifestyle through education, nutrition, exercise, emotional well-being and glucose control.
Exercise Apps
View a list of exercise apps for physical activity that children can use at home.
Gluten-free on a Budget
Eating gluten-free can be challenging – especially on a budget. Learn a few quick tips to help you find the gluten-free food and ingredients.
Precision Mitochondrial Medicine
Watch a video where Marni Falk, MD, explains the requirements in precision mitochondrial medicine for addressing health system challenges in big data integration and mining, pre-clinical therapeutic modeling, innovative clinical trial design and team-based clinical care delivery.
Guided Mindfulness and Walking Tip Sheet
This guided mindfulness walk can help ease anxiety in stressful times. Recordings available in English and Spanish.
Mitochondrial Disease Genes Compendium, 1st edition
Dr. Marni Falk and a team of international experts have created a resource to provide an all-in-one, readily accessible, and easy-to-use at point of care reference on mitochondrial disease from a gene-based perspective. In this book, clinicians and researchers will find a complete overview of mitochondrial disease genes relevant across all specialties, cataloging and building context around clinical features and the genetic basis of each condition.