Be Prepared for Emergencies: Checklist for Patients with Significant Medical Needs
Tips for high-risk patients to be prepared for any emergency that occurs such as inclement weather and power outages.
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The ABCs of VEO-IBD
A resource for families.
Dialysis Modalities Options for Patients and Families
This educational resource will help patients and families understand the different types of dialysis modalities that are available at CHOP. If your child is in need of dialysis, a member of the team will review the information with you so that you can make the best choice for your child and family.
Patient and Caregiver Handbook: Craniosynostosis
Learn more about craniosynostosis and surgical treatment for the condition.
Mental Health and Congenital Heart Disease: A Review
Lyla El-Messidi Hampton, PhD, ABPP-CN, pediatric neuropsychologist and co-director of the Cardiac Kids Developmental Follow-up Program at CHOP, and Nicholas Seivert, PhD, psychologist in the Cardiac Center at CHOP, review the many reasons for increased mental health risk among children with heart defects, especially single ventricle patients, and provide information about: importance of early identification and intervention; ADHD meds for CHD patients; the higher rate of autism spectrum disorders in this population; the parental distress loop; screening in primary care, and red flags; places to refer at CHOP; and more.
Family TIES: Offering Support Through a Shared Experience
Family Connection Through Trust, Information, Empathy and Support (aka, Family TIES) is a program offered through the CHOP Neuroscience Center that connects families that have already experienced epilepsy surgery with current and prospective patients and their families.
Homecare Company Contact List
This list of homecare company contact numbers is for Children’s Hospital of Philadelphia (CHOP) patients who receive supplies and devices from these companies.
Congenital Heart Initiative
While nearly 2 million adults in the United States are living with a congenital heart defect, it’s been historically hard to gather significant data on these conditions. That’s why the Heart Research Alliance, Adult Congenital Heart Association, University of California San Francisco and Children’s National Medical Center came together to develop the Congenital Heart Initiative, a patient registry for those with adult congenital heart disease (ACHD).
Guidelines for the Management of Adults with CHD
The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).
Guidelines for the Management of Adults with CHD - Spanish
The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).