Check out this fact sheet about congenital heart disease (CHD), a problem with the heart’s structure that is present at birth.

Check out this fact sheet about congenital heart disease (CHD), a problem with the heart’s structure that is present at birth.

When it comes to end-of-life decisions, planning and communication can make a big difference. See this Q&A from the Adult Congenital Heart Association.

The risk of pregnancy for women with CHD ranges widely. See this Q&A from the Adult Congenital Heart Association.

The risk of pregnancy for women with CHD ranges widely. See this Q&A from the Adult Congenital Heart Association.

While nearly 2 million adults in the United States are living with a congenital heart defect, it’s been historically hard to gather significant data on these conditions. That’s why the Heart Research Alliance, Adult Congenital Heart Association, University of California San Francisco and Children’s National Medical Center came together to develop the Congenital Heart Initiative, a patient registry for those with adult congenital heart disease (ACHD).

See this Q&A about exercise and ACHD from the Adult Congenital Heart Association.

See this Q&A about exercise and ACHD from the Adult Congenital Heart Association.

Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.

The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).