People Against Leigh Syndrome, (PALS), was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome, a genetic neurometabolic disorder that can cause deterioration of the central nervous system, including the brain, spinal cord, and optic nerve.

Watch a video where Marni Falk, MD, explains the requirements in precision mitochondrial medicine for addressing health system challenges in big data integration and mining, pre-clinical therapeutic modeling, innovative clinical trial design and team-based clinical care delivery.

This charity helps to support families with lodging while seeking care in the Philadelphia area. They have locations in Philadelphia, PA as well as Camden, NJ that offer transportation to CHOP. 

Dr. Marni Falk provides a list of systems that can be affected by mitochondrial disease, in this video by the United Mitochondrial Disease Foundation.

The Champ Foundation supports research toward better treatment and a cure for single large-scale mitochondrial deletion syndromes (SLSMDS), like Pearson syndrome.

The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.

The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.

This resource from the Roberts Individualized Genetics Center provides a visual overview about basic genetics and explains some of genetic test technologies available.