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Mitochondrial Medicine Program Resources

Our Mitochondrial Medicine Program experts have created this list of resources to help you keep your child safe and well.

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10 Facts about Mitochondria

Mitochondria are the batteries that produce more than 90 percent of your body's energy. Learn more facts about mitochondria and mitochondrial disorder.

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Angel Flights

This nonprofit supports families to fly for treatment options not close to their home. 

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Cure Mito Foundation

The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

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CureARS

CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.

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Diagnosis and Management of Mitochondrial Disorders

"Written by the world’s foremost mitochondrial researchers, the book comprehensively presents the state-of-the-art in mitochondrial medicine, making it of interest to a wide variety of specialists, including neurologists, geneticists, internists and biologists."

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Family Assistance Grant

Mito Action offers a grant through Marcel’s Way Family Fund to help families cover unpaid medically related expenses. Click here to apply.

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International Mito Patients (IMP)

International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.

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Leber’s Hereditary Optic Neuropathy (LHON)

This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others. 

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Leigh Syndrome Registry

If you or a family member has been diagnosed anywhere in the world with Leigh Syndrome, please enroll in the patient registry to make an important contribution to Leigh Syndrome research.

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