Hyperinsulinism, LINE Type: Paige’s Story
Congenital hyperinsulinism is rare — 1 in 50,000 births — and Paige had a rare type of HI. But CHOP’s expertise allowed her to be cured.
Our team of pediatric endocrinologists, surgeons, radiologists, pathologists, anesthesiologists, advanced practice nurses, nurses, social workers, genetic counselors, psychologists, researchers, speech and feeding therapists, and dietitians work together to provide specialized and seamless care.
Congenital hyperinsulinism is rare — 1 in 50,000 births — and Paige had a rare type of HI. But CHOP’s expertise allowed her to be cured.
The combination of a barking dog, an alert local endocrinologist, and the experts at CHOP’s Congenital Hyperinsulinism Center gave Adriana the best result possible: a cure.
Alaya's family traveled from North Carolina seeking the expertise of CHOP’s Congenital Hyperinsulinism Center. She became the 500th baby to have a pancreatectomy at CHOP.
Siblings Lily and Landon were both treated for congenital hyperinsulinism at Children's Hospital of Philadelphia.
When her daughter's HI/HA was well managed, this mom turned her attention to advocating for her child's needs at school.
Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.
Eimy was diagnosed with a newly recognized type of HI, a transient form called HNF1A-hyperinsulinism. Treatment for HNF HI can be tricky as the “just right” dose of diazoxide continues to fluctuate as children grow.
I told them CHOP was the best place for Dante to go … When I need their expertise, they’re there.
Cooper traveled from Rhode Island to CHOP for treatment of Beckwith-Wiedemann syndrome and hyperinsulinism. Now 2 1/2 years old, he is happy, active and intellectually on target.
Jaylene was born with Beckwith-Wiedemann syndrome and hypoglycemia. She was treated at the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia.