PHACE Syndrome Community
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Liam’s Land for Lymphatic Malformation Research
Liam’s Land’s focus is research, a registry, funding genetic testing and clinical trials.
Lipedema Foundation
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
Proteus Syndrome Foundation
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
PTEN Hamartoma Tumor Syndrome Foundation
Education, financial assistance, research and awareness.
Section 504
Section 504 of the Rehabilitation Act of 1973 ensures that individuals with disabilities are given protection from discrimination. Often at school, this means that a child is allowed reasonable accommodations as determined by a 504 Committee.
Acupuncture in Pediatrics: A Review
More and more pediatric healthcare systems are incorporating acupuncture for pain management and other purposes.
Good Friends Are Hard to Find by Fred Frankel
Suggests ways in which parents can help children make and maintain friendships, including scheduling one-on-one play dates, encouraging good behavior, and overcoming hyperactivity.
Teaching Your Child the Language of Social Success by Marshall P. Duke, Stephe Nowicki, and Elisabeth A. Martin
Shows parents and teachers how to improve children's nonverbal communication skills, offering the tools children need to communicate ideas and establish and maintain relationships.
The Unwritten Rules of Friendship: Simple Strategies to Help Your Child Make Friends by Natalie Elman and Eileen Kennedy-Moore
This practical and compassionate handbook helps parents sharpen any child's social skills by identifying the "unwritten rules" that govern all relationships.