Guided Mindfulness and Walking Tip Sheet
This guided mindfulness walk can help ease anxiety in stressful times. Recordings available in English and Spanish.
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Mitochondrial Disease Genes Compendium, 1st edition
Dr. Marni Falk and a team of international experts have created a resource to provide an all-in-one, readily accessible, and easy-to-use at point of care reference on mitochondrial disease from a gene-based perspective. In this book, clinicians and researchers will find a complete overview of mitochondrial disease genes relevant across all specialties, cataloging and building context around clinical features and the genetic basis of each condition.
World Breastfeeding Week Celebration
World Breastfeeding Week (WBW) is an annual celebration and global campaign.
The Lupus Foundation of America
Get answers about lupus, its diagnosis and treatment options. Find help and resources, read news and stories, and learn about the Lupus Foundation of America national patient advocacy and research program.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Role of ECMO in Treating Babies with Congenital Diaphragmatic Hernia
Babies born with congenital diaphragmatic hernia (CDH) may go on ECMO if they aren’t responding well to other efforts to stabilize them. Find answers to common questions parents have about this potential treatment.
Frequently Asked Questions about Congenital Diaphragmatic Hernia: Helping You Make Choices About Your Child's Care
More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.
Patient Resources and Contacts
Learn how to connect with members of the team.
GlucaGen HypoKit
GlucaGen® is a prescription medicine used to treat very low blood sugar (severe hypoglycemia) in people with diabetes who use insulin.
CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.