Cystic Fibrosis Foundation
CFF is the world’s leader in the search for a cure for cystic fibrosis. Find information about CF, including treatment and research and how you can get involved.
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Early Communication Skills for Children With Down Syndrome: A Guide for Parents and Professionals
This book describes the communication delays that are common in children with Down syndrome.
Primary Ciliary Dyskinesia Foundation (PCD)
PCDF is a not-for-profit patient advocacy foundation for individuals with inherited ciliary disorders and their caregivers.
Gift of Life
Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
NIDDK is a branch of the National Institutes of Health that offers health and research information about a variety of digestive diseases that can affect the liver.
Transplant Recipients International Organization, Inc.
The Transplant Recipients International Organization offers transplant and donation information and resources.
U.S. Department of Health and Human Services' Donation Initiative
The U.S. Department of Health and Human Services' Donation Initiative provides information about organ donation.
Lizzy Gets a New Liver
Lizzy Gets a New Liver by Lizzy Ribal is a 34-page, spiral bound book for children that tells the story of a liver transplant from Lizzy's perspective.
It Gets Dark Sometimes: My Sister's Fight to Live and Save Lives
This is a book for adults in which Pulitzer Prize winner Jeffrey Marx chronicles his sister's fight with liver disease and her two liver transplants.
American Organ Transplant Association (AOTA)
The American Organ Transplant Association helps to make organ transplant surgery, travel and aftercare available to patients and their families.