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The Lily Foundation

The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.

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CureARS

CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.

Health resource

Leber’s Hereditary Optic Neuropathy (LHON)

This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others. 

Health resource

Mitochondrial Medicine Society (MMS)

Founded in 1998 by doctors Richard Haas and Robert Naviaux, the MMS represents an international group of physicians, researchers and clinicians working towards advancing education, research and global collaboration in clinical mitochondrial medicine.

Health resource

mitoSHARE

mitoSHARE is a worldwide patient-populated registry initiative stewarded by UMDF. The goal of the registry is to advance scientific research using data gathered from patients and families affected by mitochondrial disease.

Health resource

Energy Therapy

This resource from Children’s Hospital of Philadelphia provides information about energy therapy, its benefits and what to expect during and after treatment.

Health resource

Terapia de energía

Las terapias de energía son tratamientos de toques terapéuticos en las que los proveedores utilizan las manos para apoyar la curación y el bienestar al equilibrar el sistema energético de su hijo.

Health resource

What is Aromatherapy?

The following resource from Children’s Hospital of Philadelphia (CHOP) provides information about aromatherapy, its benefits and what to expect during and after treatment.

Health resource

¿Qué es la aromaterapia?

La aromaterapia utiliza aceites provenientes de raíces, hojas, semillas o flores de ciertas plantas para ayudar a mejorar el estado de ánimo de una persona o hacer que se sienta mejor.

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