Parent Project Muscular Dystrophy
PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births.
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Spinal Muscular Atrophy Foundation
The mission of the SMA Foundation is to accelerate the development of a treatment for spinal muscular atrophy, the number one genetic killer of infants and toddlers.
Myasthenia Gravis Foundation of America
Find information about myasthenia gravis (MG), including living with MG, community support, research and how you can help.
American Society of Plastic Surgeons (ASPS)
The American Society of Plastic Surgeons (ASPS) offers information about cleft lip and cleft palate repairs.
Children's Craniofacial Association (CCA)
The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.
Cleft Advocate
The Cleft Advocate educates and inspires families whose lives are touched by cleft lip and/or palate or other craniofacial anomalies.
FACES: The National Craniofacial Association
FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident or birth.
AdoptCleft
AdoptCleft is a support group for parents wanting to adopt cleft children, parents that have cleft children (biological or adopted), and others that can contribute or learn from the conversations.
American Cleft Palate-Craniofacial Association (ACPA)
ACPA is an international nonprofit medical society of healthcare professionals who treat and/or perform research on birth defects of the head and face.
Changing Faces
Changing Faces provides support and promotes respect for everyone with a visible difference. Helpful resources include advice for meeting new people when you have a visible difference.