Foundation to Fight H-ABC
Provides information about H-ABC to spread awareness about this degenerative disease, and raises funds for research on gene therapy treatments that could stop the degenerative effects of H-ABC.
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Gavin Flying for a Cure
Gavin Flying For A Cure was created to honor Gavin Quimby (Super Gav) and to bring awareness to metachromatic leukodystrophy (MLD). Read Gavin's story and find out how you can get involved.
Leukodystrophy Family Forum
Find answers to frequently asked questions and common issues shared by the leukodystrophy community. Access disease and research information and links to support resources.
Mission Massimo Foundation
It aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood leukodystrophies and to translate these findings into clinical treatments.
AACAP – The Anxious Child
Learn about anxiety in children, including causes, symptoms and treatment.
AACAP – The Depressed Child
Learn about the signs of depression in children and the importance of early diagnosis and treatment.
Project ADAM®
Youth Heart Watch is an affiliate of Project ADAM®, which offers a variety of resources to help schools implement programs to make automated external defibrillators (AEDs) available. These programs also help schools prepare for a cardiac emergency through CPR and AED training and education for students and staff, fundraising support, and sudden cardiac arrest (SCA) awareness education.
Exam Demonstration Videos
Watch CHOP physicians demonstrate how to perform specific evaluations on children and teens. Topics include abdominal exams, evaluations for concussion and stroke, and a variety of orthopaedic exams.
AYA Cancer Chat: Life Interrupted
Listen in to podcasts where adolescents and young adults (AYA) from the Cancer Center at The Children's Hospital of Philadelphia discuss their experiences with cancer diagnosis and treatment.
Transitioning Your Arthritis and Rheumatic Disease Care to an Adult Provider
Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.