National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
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The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
How Vision Can Support or Delay Learning in a Child with Down Syndrome: Part 2
Vision refers to more than an ability to see things close or far away. The eyes’ ability to move and work together as a team are important aspects of vision.
Down Syndrome Checklist: Birth
Learning that your child has Down syndrome can be overwhelming. This checklist was developed to help guide you through the first steps.
How to Administer High-volume Colonic Enemas
Learn how to administer high-volume colonic enemas from an expert at The Children's Hospital of Philadelphia.
How to Give an Enema to a Child
Learn how to administer a saline, mineral oil or Bisacodyl enema to a child. This video offers parents and caregivers step-by-step instructions.
How Anorectal Manometry Is Performed
In this video for parents and caregivers, you'll learn about prep instructions for an anorectal manometry exam, what to expect during the procedure and what your child will need to do during the test.
How Esophageal Manometry Is Performed
Esophageal manometry is a procedure that measures pressure, sensation and coordination of the esophageal muscles. In this video for parents and caregivers, you'll learn about what you and your child can expect during this procedure and watch as it's performed on a medical mannequin
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.