Children with hyperinsulinism (HI) treated with medication, surgery or a combination of both require ongoing surveillance to ensure their HI is well managed and to monitor for complications of treatment that may occur.

We are pioneering diagnostic tools and treatments tailored specifically to the type and severity of each child’s HI. To monitor these patients, the Congenital Hyperinsulinism Center created a special HI Multidisciplinary Clinic so families can conveniently see specialists from Endocrinology, Gastroenterology, Nutrition, Genetics, Psychology and Social Work in one location during one appointment. The team works closely together to ensure each child’s care is optimized.

Our collaborative team of experts will evaluate and treat children with congenital hyperinsulinism and other associated conditions, such as Beckwith-Wiedemann syndrome, Kabuki syndrome, post-prandial hypoglycemia, post-pancreatectomy diabetes, and medication-induced or post-pancreatectomy pancreatic insufficiency. HI is a dynamic disease, so those on medication may need adjustments as they grow. Children whose HI is part of a genetic syndrome also benefit from being evaluated by CHOP’s experts.

What to expect during your child’s appointment

Our clinic is located within Endocrinology on the seventh floor of the Buerger Center for Advanced Pediatric Care, located at 3500 Civic Center Blvd., Philadelphia, PA, on the Raymond G. Perelman Campus.

The team will meet with patients and their families to help create the best management plan for keeping children safe and healthy. Please plan to spend the afternoon at CHOP seeing the specialists specific to your child’s needs. During this visit, your child may see a provider from Endocrinology, Gastroenterology (GI), Nutrition, Genetics, Psychology and Social Work. When it is appropriate, patients and their family may also meet with the HI Center’s dedicated genetic counselor. The HI Center can also facilitate same-day scheduling for children who need to see Neurology.

Children and families will be seen in clinic every three to six months. If a hospital admission is needed to assess treatment regimen or fasting tolerance, admission will be scheduled during the clinic visit.

When you arrive for your visit, you will check in at the welcome desk in the Buerger Center lobby where you’ll receive a visitor badge. We encourage you to arrive at least 15 minutes prior to your scheduled appointment time to allow enough time to park and get checked in.

You’ll then be directed to the seventh floor, where you will check in with the medical team at a self-check-in kiosk or one of our patient service representatives.

Once escorted to an exam room, you will not need to move around — all the specialists planned as part of your appointment will come to you.

Please bring your child’s glucometer to the visit with you.

Please bring any necessary referrals with you.

New patients and follow-up appointments

To schedule a new patient or follow-up appointment, call 215-590-3174, pressing option #1, and request assistance from the hypoglycemia nurse coordinator. You will need to fill out a Welcome Form in MyCHOP and send your child’s medical records to the HI Center prior to your child’s first appointment. Records can be faxed to 215-590-3053. We will provide more details on the intake process for new patients when you are scheduling your appointment.