Our patients' stories
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia
Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Surgery for a Brain Tumor: Julia's Story
While Julia’s diagnosis of a brain tumor was a shock to her family, the location and type of tumor meant surgery at CHOP was the only treatment she needed.
Congenital Nephrotic Syndrome and Kidney Transplant: Molly’s Story
After Molly qualified for a kidney transplant, a new organ from a living donor was identified thanks to CHOP’s involvement with the National Kidney Registry.
Managing Big Emotions: Effie’s Story
Counseling on its own wasn’t enough to help Effie regulate her behavior. After working with CHOP, she started on medication and now can control her emotions.
Celiac Disease: Emma’s Story
Diagnosed with celiac disease in first grade, Emma, now 9, rallies for changes in food labeling to better protect kids like her.
Siblings with Autism: Erik and Luke’s Story
A family finds hope at CHOP and now advocates for continued autism acceptance, research and support.
Autism Spectrum Disorder: Snai’s Story
After being diagnosed with autism, Snai began receiving various therapies. But his family’s emphasis on emotional intelligence has truly helped him thrive.
Noah and Nate’s Journey with Autism
Siblings with very different manifestations of autism both find the support and resources they need through CHOP’s Center for Autism Research.
Autism Spectrum Disorder: Luke and Esmeralda’s Story
CHOP support helps Luke and Esmeralda’s family access vital resources. The family is grateful to have such a positive community.
Siblings with Autism: Erik and Luke’s Story
A family finds hope at CHOP and now advocates for continued autism acceptance, research and support.
Bronchus Tumor: Bennett’s Story
Bennett’s breathing easy after the tumor blocking his lung was removed not with surgery, but with cutting-edge techniques, treatments and trial medication.
Twin-twin Transfusion Syndrome: Josephine and Athena’s Story
When their twins were diagnosed prenatally with twin-to-twin transfusion syndrome, a New Jersey couple found hope at Children’s Hospital of Philadelphia.
Surgery for Acetabular Dysplasia and Femoral Head Cyst: Lauren’s Story
When Lauren, 38, was diagnosed with acetabular dysplasia, her doctors in North Carolina referred her to a world-renowned hip expert at Children’s Hospital of Philadelphia.
Food Allergies and Oral Immunotherapy: Madelyn’s Story
Eggs are back on the menu for 3-year-old Madelyn – thanks to oral immunotherapy at Children’s Hospital of Philadelphia.
Mitochondrial Disease: Nora’s Story
After severe mitochondrial disease claimed their son, a New York family relied on medical advances — and CHOP — to have a healthy daughter.
Acetabular retroversion: Hannah’s story
After receiving care at CHOP for acetabular retroversion, a painful hip condition, 15-year-old Hannah is thriving.
Legg-Calve-Perthes Disease: Max’s Story
After treatment for Legg-Calve-Perthes disease at CHOP, 7-year-old Max aims to help others with the condition.
Coming Back From Scoliosis: Annie’s Story
Teen’s pursuit of Paralympic gold spans the globe, from China to Idaho, and eventually to Philadelphia for corrective spine surgery to keep her track and field dreams alive.
Strength in Service: Nicole’s Story
An active philanthropist and longtime advocate for CHD, Nicole reflects on her journey navigating a child’s CHD.
Remembering My Heart Warrior: Beth’s Story
A Cardiac Family Advisory Council member shares her reflections on loving, and losing, a child with CHD.