Every fall, Erik and Luke, along with their parents, Jennifer and Tom, and their sister Julia, run in Meadows Miler, the 5- and 10k race they started 2017. Named after a local trail, the community run benefits autism education. Erik, Luke and Julia are triplets. While the boys were diagnosed with autism at a young age, Julia is neurotypical. The run is just one of the many ways their family advocates for autism acceptance, research and support.

“Our boys have been given great help,” says Jennifer. “It gives us purpose to help other parents know there are interventions, resources and hope. When parents have hope, they can move from acceptance into action.”

Jennifer had to search for hope. When, as an infant, Erik began to miss developmental milestones, the family was referred to Developmental and Behavioral Pediatrics at Children’s Hospital of Philadelphia (CHOP), where Erik was ultimately diagnosed with moderate-severe autism.

“That was the most difficult period of our lives,” says Jennifer. “It was like a rug was pulled out from under us.”

At 3, Erik was nonverbal and unable to hold eye contact. This inability to communicate often led to severe tantrums. Fortunately, an early diagnosis allows for early access to crucial resources. In addition to the support of Developmental and Behavioral Pediatrics, Erik was enrolled in the Princeton Child Development Institute, a New Jersey school known for research-based autism education. The family also participated in research projects and benefitted from family education through CHOP’s Center for Autism Research (CAR).

“CAR met us as a family and brought us in,” says Jennifer. “We’ve always felt we have at a seat at this multidisciplinary table and that our voices are heard by the medical experts. Our needs have been met exponentially.”

From acceptance to action

While Erik’s presentation of autism was undeniable, his brother Luke’s was the opposite. Luke met all his developmental milestones and even read early. But while he excelled academically, he couldn’t engage socially or emotionally. “We thought Luke had some quirks and that was all,” says Tom. “It’s much easier to be in denial when it’s subtle.”

Luke was 3 when one of Erik’s teachers suggested Luke be evaluated for autism. He was diagnosed at CHOP, which was a “gut punch” for his parents. “I found hope at CHOP,” says Jennifer. “The hope propelled me into action. I knew I was going to get the best possible care for my children.”

The family continued their involvement with CAR and also received a grant for Luke to attend Erik’s school. Luke received autism intervention until age 5. At kindergarten, he was able to transition to a mainstream, independent private school for boys.