Our patients' stories
Early Intervention, Remarkable Outcome: Laurence’s Experience with Craniosynostosis
After early cranial vault remodeling at Children’s Hospital of Philadelphia, this teenager is a thriving student, athlete and musician.
Cameron’s Story: Surgical Care for Extremely Complex Presentation of Hirschsprung’s Disease
After a life-threatening colon injury at 4 days old and multiple surgeries at Children’s Hospital of Philadelphia, Cameron is now happy-go-lucky at age 4.
Thriving, On and Off the Ice: Morgan’s Journey with HLHS
A young adult with CHD pursues her passion, supported by Children’s Hospital of Philadelphia’s Fontan Rehabilitation, Wellness, Activity and Resilience Development Program.
Periacetabular Osteotomy: Hannah’s Story
Diagnosed as a teen with acetabular dysplasia, Virginia teen turns to CHOP for complex surgical repair of her hip joint.
Arley’s Story: Fetal Surgery for Pericardial Teratoma
Experts from Children’s Hospital of Philadelphia performed lifesaving fetal open heart surgery to remove a tumor growing on Arley’s heart.
Celiac Disease: Charlotte & Taylor’s Story
Sisters Charlotte, 9, and Taylor, 8, are living gluten-free since being diagnosed with celiac disease and non-celiac gluten sensitivity, respectively.
Breaking Barriers: Isa’s Journey with Hip Dysplasia
A complex surgery at Children’s Hospital of Philadelphia’s best-in-nation Orthopedic Center gets an 11-year-old back to the physical activities she loves.
Garden Beds Grow Food, Health & Community: A Neighbor's Perspective
A collaboration between CHOP Healthier Together and the Sankofa Community Farm at Bartram’s Garden promotes healthy eating and improved food access by providing low-cost raised garden beds to residents in Southwest Philadelphia.
'Full of Light’: Harrison’s Experience with Laser Ablation Brain Surgery
A 9-year-old with epilepsy receives an innovative, life-changing procedure available at Children’s Hospital of Philadelphia.
Birth and Separation of Conjoined Twins: Amari and Javar’s Story
Tim and Shaneka were unprepared to learn that pregnant Shaneka was carrying conjoined twins. Despite a scary initial diagnosis, they found hope of separation at CHOP.
Finding Relief from Fructose Intolerance: Annalise’s Story
Annalise suffered with undiagnosed pain for two years before being referred to the Integrative Food Reactions Clinic at CHOP. Now, she has found sweet relief from her symptoms.
Bridget’s Story: Chiari Brain Surgery
Thanks to brain surgery at CHOP, Bridget went from experiencing daily pain caused by pulsing headaches to being moved up to varsity lacrosse, all in one year.
Caring for a Rare Variation of a Rare Disease
CHOP not only diagnosed Amelia’s extremely uncommon condition, it had the experts to treat her.
A Chaotic Symphony: Managing Three Kids with HI
Caring for three siblings with hyperinsulinism — and keeping their blood sugar in the safe range — calls for creativity and guidance from CHOP.
Feel the Beat: Lyric’s Journey with Cochlear Implantation
After cochlear implantation at Children’s Hospital of Philadelphia, a child with sensorineural hearing loss is able to hear – and enjoy – music for the first time.
Mason Family: Fabry Disease
Newborn screening for twins led to the discovery of Fabry disease, a rare lysosomal storage disease. The family found breakthrough therapy and lifelong support at CHOP.
Anaya’s Story: A New Pulmonary Valve, a New Life
CHOP’s Cardiac Center makes history when Dr. Katsuhide Maeda implants a MASA polymeric pulmonary valve in a patient’s heart to treat congenital heart defects.
Ava’s Story: Rotationplasty Promises Greater Mobility
Ava was diagnosed with osteosarcoma, an aggressive bone cancer. A novel surgery called rotationplasty allowed her ankle joint to function as a knee, maximizing her future mobility.
A New Ear for Lilliana
Lilliana was born with only one ear due to hemifacial microsomia, a condition in which the tissues on one side of the face are underdeveloped. Doctors at CHOP gave Lilliana a new ear.
A New Ear: Lilliana’s Story
Lilliana was born with only one ear due to hemifacial microsomia, a condition in which the tissues on one side of the face are underdeveloped. Doctors at CHOP gave Lilliana a new ear.