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Spina Bifida Program

Spina Bifida Program

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Infants and children with spina bifida and other spinal cord abnormalities require specialized care from a team of pediatric experts. The Spina Bifida Program at Children's Hospital of Philadelphia (CHOP) offers expert care. We provide comprehensive care from prenatal diagnosis through long-term follow-up into adulthood.

We will partner with you to provide individualized care that maximizes your child’s potential. No matter where you are on your journey, we strive to provide easy-to-navigate care that includes your entire family, your primary care physician and any specialists involved in your child’s care. We will guide you through every stage of your child’s growth and development to help them thrive.

Conditions we treat

We treat a range of spinal cord abnormalities.

  • Caudal regression syndrome/sacral agensis
  • Lipomyelomeningocele
  • Meningocele
  • Myelomeningocele
  • Myeloschisis
  • Spina bifida
  • Tethered cord
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Why choose CHOP for spina bifida care

Children with spina bifida have complex medical issues involving multiple body systems including the central nervous system, musculoskeletal system and urinary system. We give your child comprehensive care and the educational resources your family needs.

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Meet your team

Your child will be cared for by one of the most accomplished teams of spina bifida experts in the world. Your child's team might include sub-specialists in neurosurgery, urology, orthopedics, colorectal surgery and more.

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Spina Bifida Program locations

Find locations where our experts care for children with spina bifida.

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Spina Bifida Program resources

We have gathered resources to help you find answers to your questions and feel confident with the care you are providing your child at home.

Patient stories

Our Stories
Not many people can say they underwent fetal surgery during a pandemic, but Jasmin did it to give her daughter a better chance at a healthy life.

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