Children with spina bifida have complex medical issues involving multiple body systems such as the central nervous system, musculoskeletal system, and urinary and gastrointestinal systems. Our Spina Bifida Program team collaborates with your family to ensure that your child thrives.

What we offer

• Neurosurgical management, including prenatal and postnatal closure and ongoing monitoring
• Urologic care
• Individualized bowel management
• Orthopedic care, bracing and medical equipment
• Developmental and neuropsychological educational evaluations
• Patient and family education
• Mental health screening
• Sleep studies
• Training to encourage your child's independence and self-management
• Social work and connection to community resources
• Transition services into adulthood

World-class experts

Your child will receive ongoing medical and developmental assessments from a large team of experts in spina bifida. Our team of pediatric specialists includes:

• Pediatricians specializing in the care of children with spina bifida
• Neurosurgeons
• Urologists
• Orthopedic surgeons
• Colorectal surgeons
• Specialty-trained nurses and social workers
• Nurse practitioners
• Physical, occupational and rehabilitation therapists
• Neuropsychologists
• Specialists in neurology, pulmonology, nephrology, gastroenterology, genetics, orthotics and others, as needed

Linking your family to support services

We will provide your family with a medical care plan. We will send a complete report to your child’s primary care physician. In addition, our team can make recommendations to schools, connect you with community service groups and help you deal with equipment providers as needed.

We will be by your side every step of the way.