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Beyond Blood Fall 2024 Newsletter
Family Newsletter from the Comprehensive Hemostasis and Thrombosis Center at Children’s Hospital of Philadelphia.
Children’s Hospital of Philadelphia Researchers Implement Successful Virtual Driving Assessment for Teens in Healthcare Settings
Study results, the culmination of two years worth of expansion, offer strategies for providers to empower teen driving safety.
CHOP-Developed Adolescent Health Questionnaire Helps Doctors and Families Navigate Complex Issues
The questionnaire has been successfully adapted across pediatric primary care and increased discussion about drug use and sexual health.
CHOP Researchers Develop Easy-to-Use Screening Tool to Help Improve Family Access to Federal Nutrition Programs
Screeners helped families enroll in WIC and SNAP programs, which are linked to better health outcomes.
Experts in the Hemostasis and Thrombosis Center at CHOP Provide Expert Commentary on Hemophilia
Leslie Raffini, MD, and Regina Butler, RN, were quoted in the Philadelphia Inquirer on a story featuring a CHOP patient family living with hemophilia, an inherited bleeding disorder that prevents blood from clotting properly.
CHOP’s Hemostasis and Thrombosis Center Celebrates 50th Anniversary
A look back at the last five decades of treatment options to what lies ahead with additional potentially curative gene therapies.
Children’s Hospital of Philadelphia Launches Innovative Virtual Teen Driving Assessment Program with $4 Million Grant from NJM Insurance Group
The $4 million grant from NJM will help kick off a new young driver program in the summer of 2021 that will offer a state-of-the art virtual driving assessment system at select CHOP Primary Care locations in Pennsylvania and New Jersey.
Thrombophilia Testing in Healthy Children with Related Family History
Read about the prevalence of inherited thrombophilias (IT), potential benefits and limitations of IT testing in healthy children, and recommendations from Children Hospital's experts.
Gene Therapy for Hemophilia: Are We There Yet?
Recent gene therapy trial for hemophilia B showed promising results, with patients’ average factor IX level of 32 percent after treatment. CHOP aims to open a hemophilia A gene therapy trial modeled after the hemophilia B trial.
Calendar Created to Support Hemophilia Program at CHOP
One of our HTC families created a fundraising project to support hemophilia research through the CHOP Foundation. The response has been so terrific that Zoe, the sister of our patient “Iron Max,” has upped the fundraising goal multiple times.