Leslie Raffini, MD, Medical Director of the Hemostasis and Thrombosis Center at CHOP, and Regina Butler, RN, Clinical Manager for the Division of Hematology at CHOP, provided expert commentary in a piece published in the Philadelphia Inquirer highlighting a New Jersey family living with hemophilia, an inherited bleeding disorder that prevents blood from clotting properly.
Both of Melody Ward's sons -- Jadon and Roan -- were born with hemophilia. The disease runs in Melody's family, going back at least five generations. CHOP’s Hemostasis and Thrombosis Center treated and cared for Melody's father and uncles decades ago and currently treats Melody's sons today. But while Melody's father and uncles all had poor outcomes, that has changed drastically for her sons, thanks to advances in research and therapy. Read more about the family's health journey in this Philadelphia Inquirer article and how there's more hope for families like them with the approval of the first gene therapy for hemophilia A earlier this summer: https://www.inquirer.com/health/hemophilia-bleeding-disorder-family-history-medical-advancements-20230814.html.
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Leslie Raffini, MD, Medical Director of the Hemostasis and Thrombosis Center at CHOP, and Regina Butler, RN, Clinical Manager for the Division of Hematology at CHOP, provided expert commentary in a piece published in the Philadelphia Inquirer highlighting a New Jersey family living with hemophilia, an inherited bleeding disorder that prevents blood from clotting properly.
Both of Melody Ward's sons -- Jadon and Roan -- were born with hemophilia. The disease runs in Melody's family, going back at least five generations. CHOP’s Hemostasis and Thrombosis Center treated and cared for Melody's father and uncles decades ago and currently treats Melody's sons today. But while Melody's father and uncles all had poor outcomes, that has changed drastically for her sons, thanks to advances in research and therapy. Read more about the family's health journey in this Philadelphia Inquirer article and how there's more hope for families like them with the approval of the first gene therapy for hemophilia A earlier this summer: https://www.inquirer.com/health/hemophilia-bleeding-disorder-family-history-medical-advancements-20230814.html.
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