VEPTR Surgery for Spinal Muscular Atrophy: Raymond’s Story
Surgery in a child with spinal muscular atrophy (SMA) has eliminated life-threatening respiratory infections by straightening the spine and separating the ribs.
Patient stories
Thoracic Insufficiency Syndrome Patient Stories
VEPTR Surgery for Jeune Syndrome: Madden's Story
Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.
VEPTR implants to treat Jarcho-Levin syndrome: Isla’s story
After being told their daughter might not live past age 3, Isla’s parents were determined to look for a glimmer of hope, and they found it at CHOP.
Thoracic Insufficiency Syndrome and Spina Bifida: Landon’s Story
Landon's life has been transformed after his VEPTR surgery. His lung function has improved; he has enough energy to explore his surroundings,