Patient story VEPTR Surgery for Jeune Syndrome: Madden's Story Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.
Patient story VEPTR implants to treat Jarcho-Levin syndrome: Isla’s story After being told their daughter might not live past age 3, Isla’s parents were determined to look for a glimmer of hope, and they found it at CHOP.
Patient story Thoracic Insufficiency Syndrome: Arwa's Story Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.
