Severe Spine Curves and Related Complications: Vaia’s Story
When their foster daughter faced insurmountable odds, a Delaware couple turned to CHOP for help with complications from spinal muscular atrophy.
Patient stories
Thoracic Insufficiency Syndrome Patient Stories
PICU Experience at the Middleman Family Pavilion: Louie’s Story
After a recent surgery to repair a fractured leg, Louie was transferred to the Middleman Family Pavilion in King of Prussia to recover, which is much closer to the family’s home.
Thoracic insufficiency and Jeune syndrome: Bubba’s story
When Bubba was born with serious health issues, his family turned to CHOP for life-saving treatment from Jeune syndrome and thoracic insufficiency syndrome.
Sophia’s Story: MAGEC Growing Rod Implantation to Treat Neuromuscular Scoliosis
A CHOP occupational therapist's keen observation led to Sophia's neuromuscular scoliosis diagnosis, and supportive treatment to enhance her quality of life.