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Thoracic Insufficiency Syndrome patient stories

Patient story

Severe Spine Curves and Related Complications: Vaia’s Story

When their foster daughter faced insurmountable odds, a Delaware couple turned to CHOP for help with complications from spinal muscular atrophy.

Patient story

PICU Experience at the Middleman Family Pavilion: Louie’s Story

After a recent surgery to repair a fractured leg, Louie was transferred to the Middleman Family Pavilion in King of Prussia to recover, which is much closer to the family’s home.

Patient story

Thoracic insufficiency and Jeune syndrome: Bubba’s story

When Bubba was born with serious health issues, his family turned to CHOP for life-saving treatment from Jeune syndrome and thoracic insufficiency syndrome.

Patient story

Sophia’s Story: MAGEC Growing Rod Implantation to Treat Neuromuscular Scoliosis

A CHOP occupational therapist's keen observation led to Sophia's neuromuscular scoliosis diagnosis, and supportive treatment to enhance her quality of life.

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Thoracic Insufficiency Syndrome patient stories

Severe Spine Curves and Related Complications: Vaia’s Story

PICU Experience at the Middleman Family Pavilion: Louie’s Story

Thoracic insufficiency and Jeune syndrome: Bubba’s story

Sophia’s Story: MAGEC Growing Rod Implantation to Treat Neuromuscular Scoliosis

Explore all our Resources