Neurofibromatosis Family Association (NFFA)
NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.
Resources
Neurofibromatosis type 1 Resources
Our Neurofibromatosis type 1 experts have created this list of resources to help you keep your child safe and well.
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American Cancer Society
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.