NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by  neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

Changing Faces provides support and promotes respect for everyone with a visible difference. Helpful resources include advice for meeting new people when you have a visible difference.

The Children's Craniofacial Association empowers and gives hope to individuals and families affected by facial differences.

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident or birth.

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.

In this webinar CHOP experts discuss neuropsychological evaluation, the legal rights of students, and how to support your child as he returns to learning.