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Moyamoya Disease Resources

Our Moyamoya Disease experts have created this list of resources to help you keep your child safe and well.

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KISS Pediatric Stroke Support Group (Facebook)

The KISS Initiative is an online Facebook support group for families of pediatric stroke survivors. It is a public forum where parents share stories, resources and support.

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Neuro-Rehab Parent Support Group

The Neuro-Rehab Parent Support Group is open to parents and caregivers of children with acquired brain injury (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.

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New Jersey Traumatic Brain Injury (TBI) Fund

The Traumatic Brain Injury (TBI) Fund provides New Jersey residents of any age, who have survived a traumatic brain injury, the opportunity to access the brain injury related services and supports they need to live in the community.

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Pediatric Stroke Awareness Video: A Stroke Can Happen at Any Age

The International Alliance for Pediatric Stroke, in partnership with the American Heart Association/American Stroke Association created a video about pediatric stroke to help raise awareness that a stroke can happen to infants, children and even before birth. The video features Rebecca Ichord, MD, pediatric neurologist and director of the Pediatric Stroke Program at CHOP.

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Pediatric Stroke Infographic

Pediatric stroke can happen in infants, children and even before birth. This infographic created by the American Stroke Association offers facts about perinatal and childhood stroke.

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Pediatric Stroke Warriors

Pediatric Stroke Warriors was founded by the mother of a child who had a stroke. Their mission is to support children and their families as they recover from a stroke. Supports include the Brave Box/Warrior Bag Program, a family toolkit brochure, and lists of national and state resources.

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Signs of Stroke in a Child

Lori Billinghurst, MD, a pediatric neurologist at Children’s Hospital of Philadelphia, talks about signs of stroke in a child and when symptoms call for an urgent stroke evaluation. The video interview is from the International Stroke Conference 2017.

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Special Education After Stroke

Find tips for children returning to school after a stroke and information about special education for children who have suffered a stroke.

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