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Cerebral Sinovenous Thrombosis (CSVT) Resources

Our Cerebral Sinovenous Thrombosis (CSVT) experts have created this list of resources to help you keep your child safe and well.

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KISS Pediatric Stroke Support Group (Facebook)

The KISS Initiative is an online Facebook support group for families of pediatric stroke survivors. It is a public forum where parents share stories, resources and support.

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New Jersey Traumatic Brain Injury (TBI) Fund

The Traumatic Brain Injury (TBI) Fund provides New Jersey residents of any age, who have survived a traumatic brain injury, the opportunity to access the brain injury related services and supports they need to live in the community.

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Pediatric Stroke Awareness Video: A Stroke Can Happen at Any Age

The International Alliance for Pediatric Stroke, in partnership with the American Heart Association/American Stroke Association created a video about pediatric stroke to help raise awareness that a stroke can happen to infants, children and even before birth. The video features Rebecca Ichord, MD, pediatric neurologist and director of the Pediatric Stroke Program at CHOP.

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Pediatric Stroke Infographic

Pediatric stroke can happen in infants, children and even before birth. This infographic created by the American Stroke Association offers facts about perinatal and childhood stroke.

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Pediatric Stroke Warriors

Pediatric Stroke Warriors was founded by the mother of a child who had a stroke. Their mission is to support children and their families as they recover from a stroke. Supports include the Brave Box/Warrior Bag Program, a family toolkit brochure, and lists of national and state resources.

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Signs of Stroke in a Child

Lori Billinghurst, MD, a pediatric neurologist at Children’s Hospital of Philadelphia, talks about signs of stroke in a child and when symptoms call for an urgent stroke evaluation. The video interview is from the International Stroke Conference 2017.

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Special Education After Stroke

Find tips for children returning to school after a stroke and information about special education for children who have suffered a stroke.

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Teen Neuro-Rehab Support Group

The Teen Neuro-Rehab Support Group provides support to teens and young adults (ages 13-21) with acquired brain injuries (including traumatic brain injury and stroke). The group meets the second Wednesday of every month from 7 to 8:30 p.m.

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