Skip to main content

Resources

Spina Bifida Program Resources

Our Spina Bifida Program experts have created this list of resources to help you keep your child safe and well.

Questions, more information
Appointments

Search Resources

Health resource

Centers for Independent Living - New Jersey

Centers for Independent Living (CILs) are community-based, consumer-driven organizations that provide information and referral, peer counseling, skills training, advocacy and a variety of services based on individual needs. Find CIL services in New Jersey.

Health resource

Centers for Independent Living - Pennsylvania

Centers for Independent Living (CILs) are community-based, cross-disability, non-profit organizations that are designed and operated by people with disabilities. Learn more about the services provided by Pennsylvania CILs.

Health resource

Disability Rights PA Transition Resources

Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.

Health resource

Facts About Spina Bifida

Did you know that spina bifida is the most common permanently disabling birth defect in the U.S.? Learn more spina bifida facts and help spread the word.

Health resource

Got Transition

Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.

Health resource

Guardianship in New Jersey

A guardian is someone that is legally authorized to act on behalf of a minor or an incapacitated adult to assure that the person’s health, safety, and welfare needs are met and that their rights are protected. New Jersey provides helpful information on obtaining guardianship and a guardianship packet.

Health resource

New Jersey Division of Vocational Rehabilitation Services (DVRS)

The mission of the New Jersey Division of Vocational Rehabilitation Services (DVRS) is to enable eligible individuals with disabilities to achieve an employment outcome consistent with their strengths, priorities, needs, abilities, and capabilities. Find resources including a guide to vocational rehabilitation and a list of DVRS field offices.

Health resource

Pennsylvania Health Law Project: Medical Assistance

The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more. 

Jump back to top