Spina Bifida Program News

Your child will be cared for by one of the most accomplished teams of spina bifida experts in the world. Your child's team might include sub-specialists in neurosurgery, urology, orthopedics, colorectal surgery and more.

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Barley Salad Recipe

Mar 21, 2024

Get a simple, tasty and healthy recipe from the family of Spina Bifida Program’s Danielle D’Amico.

Cone Enema Bowel Management Program for Spina Bifida Patients

Mar 21, 2024

When a child with spina bifida turns 3, their CHOP care team typically recommends adding a cone enema bowel management plan to their care.

MOMS3: Follow-up in the Teen and Young Adult Years to the Management of Myelomeningocele Study

Jan 25, 2023

Phase three of the Management of Myelomeningocele Study (MOMS), known as “MOMS3,” is a study monitoring the health outcomes of participants ages15-24.

Updates from the Spina Bifida Program

Feb 1, 2023

An update on our first Education Day in November and more.

Mindfulness: A Useful Coping Strategy

Feb 1, 2023

Youth with chronic conditions like spina bifida and their families can experience high levels of stress.

Therapy Spotlight: Supporting Spina Bifida Patients Through OT and PT

Apr 19, 2022

Occupational and physical therapists support Spina Bifida Program patients in many ways. Learn about new resources and tips on bowel/bladder programs, and benefits of tummy time.

Meet Our Newest Spina Bifida Program Team Members

Apr 19, 2022

We're very proud of the compassionate, highly qualified, competent professionals who make up our Spina Bifida Program team. Meet our newest team members and learn a little bit about their expertise and interests.

Bowel Management for Spina Bifida

Apr 12, 2022

Our team takes an active role in helping our patients with spina bifida become more independent with neurogenic bowel management. From training patients and families in the use of transanal irrigation systems to developing a novel cone enema system.

Recent Study Finds Myelomeningocele Sac Associated with Worse Lower Extremity Neurologic Sequelae

Feb 14, 2022

In fetuses with open spinal dysraphism, the risk of talipes is increased with an MMC sac, and a larger sac may result in additional injury through mechanical stretching of the nerves.

The Role of the Fetal Spina Bifida APN Program Coordinator