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Pulmonary Hypoplasia Program Patient Stories

Here at the Pulmonary Hypoplasia Program, you have access to a team with a rare depth of knowledge, including specialists from neonatology, pulmonary medicine, cardiology, general surgery, nutrition, audiology, behavioral health, social services and more.

Appointments
Patient story

Giant Omphalocele: Jameson's Story

When Jameson was diagnosed with giant omphalocele before birth, the positive attitude of the team at CHOP made his parents feel much better about the journey ahead.

Patient story

Giant Omphalocele: Jackson's Story

Casey and Bryan Kirsch were determined to give their son Jackson every chance to live a healthy life when they learned that he had a giant omphalocele.

Patient story

Giant Omphalocele: Charlotte's Story

Diagnosed before birth with giant omphalocele, Charlotte came to CHOP for delivery, surgery and follow-up care by a team experienced in caring for this birth defect.

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