Heterotaxy Syndrome: Ethan’s Story
After learning that their unborn baby had heterotaxy syndrome and CHD, Alison and Philip turned to The Children’s Hospital of Philadelphia for hope.
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After learning that their unborn baby had heterotaxy syndrome and CHD, Alison and Philip turned to The Children’s Hospital of Philadelphia for hope.
William was born with tetralogy of Fallot, a heart condition that requires open heart surgery shortly after birth, and had surgery at CHOP.
Lily was diagnosed with hypoplastic left heart syndrome (HLHS) and underwent several surgeries at CHOP's Cardiac Center to treat the complex congenital heart defect.
Diagnosed before birth with hypoplastic left heart syndrome, Maya received care and life-saving open heart surgery from CHOP's Cardiac Center.
Born with a heart defect called tetralogy of Fallot, Jack was just 9 days old when his family learned he also had chromosome 22q11.2 deletion, a rare chromosomal difference.
Matthew was diagnosed with aortic and pulmonary stenosis when he was 3 months old and underwent heart bypass surgery at CHOP's Cardiac Center.
Born with a heart defect called aortic stenosis, Sarah had two open heart surgeries when she was young. Now 16, she’s an honor roll student who loves art and design.
Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.
Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.
When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery.