Pediatric Epilepsy Program Patient Stories

Our Pediatric Epilepsy Program has one of the world's largest, most accomplished teams. Our expert neurologists, nurse practitioners, nurses, neuropsychologists, neurosurgeons, neuropathologists, neuroradiologists and social workers are specially trained to care for your child.

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Patient story

'Full of Light’: Harrison’s Experience with Laser Ablation Brain Surgery

A 9-year-old with epilepsy receives an innovative, life-changing procedure available at Children’s Hospital of Philadelphia.

Patient story

Brandon’s Story: Ketogenic Diet Cures Myoclonic Atonic Epilepsy

Read about Brandon's journey from dangerously uncontrollable seizures to seizure-freedom for the past 10 years.

Patient story

Nadia’s Story: Selective Dorsal Rhizotomy for Cerebral Palsy

Selective dorsal rhizotomy surgery followed by intensive physical and occupational therapy enabled Nadia to walk without an assistive device for the first time at age 6.

Patient story

Kylen’s Story: Ketogenic Diet to Control Seizures

Just a few days after he was born, Kylen suffered four seizures and was diagnosed with epilepsy.

Patient story

Sara's Story: Surgery to Treat Epilepsy

Sara lived with seizures until age 9. Her family flew 7,000 miles from United Arab Emirates so she could undergo epilepsy surgery at Children’s Hospital of Philadelphia. Every day since, Sara has told her mom how happy she is to have had the procedure.

Patient story

Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care

Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.

Patient story

Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly

Learning that their child has a brain condition was a traumatic experience for Samia and Andre.

Patient story

Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.

Patient story

Hemispherotomy Surgery to Treat Seizures: Matthew’s Story

Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.

Patient story

Learning to Grieve: Joseph “Joey” Nolan’s Story

Support from CHOP’s palliative care and bereavement specialists helped Joey’s family through the heartbreaking experience of losing a child and brother.

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Pediatric Epilepsy Program Patient Stories

'Full of Light’: Harrison’s Experience with Laser Ablation Brain Surgery

Brandon’s Story: Ketogenic Diet Cures Myoclonic Atonic Epilepsy

Nadia’s Story: Selective Dorsal Rhizotomy for Cerebral Palsy

Kylen’s Story: Ketogenic Diet to Control Seizures

Sara's Story: Surgery to Treat Epilepsy

Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care

Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly

Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story

Hemispherotomy Surgery to Treat Seizures: Matthew’s Story

Learning to Grieve: Joseph “Joey” Nolan’s Story