If you or a family member has been diagnosed anywhere in the world with Leigh Syndrome, please enroll in the patient registry to make an important contribution to Leigh Syndrome research.

The "privacy assured" registry helps collect information that will assist in diagnosing and treating mitochondrial disease.

Founded in 1998 by doctors Richard Haas and Robert Naviaux, the MMS represents an international group of physicians, researchers and clinicians working towards advancing education, research and global collaboration in clinical mitochondrial medicine.

mitoSHARE is a worldwide patient-populated registry initiative stewarded by UMDF. The goal of the registry is to advance scientific research using data gathered from patients and families affected by mitochondrial disease.

The Mitochondrial Medicine team at CHOP provides this global resource to facilitate genomic and phenotype knowledge and data sharing and analysis across the global mitochondrial disease community.