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Mitochondrial Medicine Program Resources

Our Mitochondrial Medicine Program experts have created this list of resources to help you keep your child safe and well.

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Cure Mito Foundation

The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

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CureARS

CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.

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International Mito Patients (IMP)

International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.

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Leber’s Hereditary Optic Neuropathy (LHON)

This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others. 

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MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.

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PALS (People Against Leigh Syndrome)

People Against Leigh Syndrome, (PALS), was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome, a genetic neurometabolic disorder that can cause deterioration of the central nervous system, including the brain, spinal cord, and optic nerve.

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The CHAMP Foundation

The Champ Foundation supports research toward better treatment and a cure for single large-scale mitochondrial deletion syndromes (SLSMDS), like Pearson syndrome.

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The Lily Foundation

The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.

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