This nonprofit supports families to fly for treatment options not close to their home. 

The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.

Mito Action offers a grant through Marcel’s Way Family Fund to help families cover unpaid medically related expenses. Click here to apply.

International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.

This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others. 

This page is dedicated solely to the parents of children who have been diagnosed with Leigh's Syndrome - a mitochondrial disease.

If you or a family member has been diagnosed anywhere in the world with Leigh Syndrome, please enroll in the patient registry to make an important contribution to Leigh Syndrome research.

This fund is designed to help mito patient and families obtaining or seeking care at CHOP. These funds can help supplement travel related costs, uncovered medical expenses, or other financial hardships given the underlying diagnosis. Our families can apply once a year to this fund for support. To find out more information or if your needs qualify you can reach out to our social worker Addie Fishstein fishsteina@chop.edu.

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.